• A story from last year in March where usually, Henrique 5, is calm, cooperative with the nurses to participate in his self-infusion of factor [...]

  Some days are tough…..Alguns dias são mais difíceis que outros…

  March 20, 2010
• He told me that this experience made him pay more attention to himself, to how he is. It had made him more interested in learning about his  [...]

  Obay’s story : another letter

  February 27, 2010
• Friendship is built, is borned, is taking care of, is cherrished, is celebrated, is enjoyed, is warmth, is silence, is laughs, is tears , is [...]

  FRIENDSHIP / AMIZADE / AMITIÉ / AMISTAD/EL SADAKA

  December 15, 2009
• Ed, is 23 and he stopped studying in high school…he had to work. Now , he is a young father with a baby girl to raise and he wants to [...]

  Ed is going back to school!/ Supletivo na veia: quero melhorar minha vida :)

  December 3, 2009

• When I took my 3 children (Da, 18..Rubi 12 and Iggy 9) in January to see this film…i must confess that the first 10 minutes were a [...]

  On love in 2009: a good movie Twilight / Crepúsculo: uma proposta de amor em 2009

  October 5, 2009
• From baby born phase till adulthood…these moms never gave up! Da fase bebê  de  colo até ficar adolescente/ jovem adulto , estas mães [...]

  Women: proud to see their boys BIG!/ Mulheres mães orgulhosas dos filhos

  September 10, 2009
• One must do what he/she feels that it is the “good, nurturing thing” for the soul… and what’s the Soul anyway? soul is [...]

  Maybe….Pode ser…One day…um dia

  September 9, 2009
• Igor is very funny…he is with us at the Hemophilia Center of Sao paulo  from the day he was borned. At first he was afraid of needles , [...]

  Igor ´s challenge / O desafio de Igor

  August 16, 2009

• AND WHAT I see? I am a mother of 2 adolescent girls; one is slowly getting out the phase (18 and a half) and the other one starting to be in it [...]

  RE FLEXION, REFLET, REFLEXO….i look in-me, je me regarde, olho para dentro

  August 10, 2009
• FELIPE 15, kAIO, 14, Breendon 13…. cada um tem uma história para contar: Felipe está estudando, tem vários amigos atualmente (porque na [...]

  Adolescents first….with hemophilia, ok just one more aspect / Adolescente primeiro…com hemofilia A , sím! más é só mais um dado! ;0

  March 14, 2009
• Durante o acantonamento Alexandre, que tem hemofilia A leve (mais de 5% de fator VIII no sangue) foi uma novidade para o resto dos jovens que [...]

  “He is not a real hemophiliac”! ? “Ele não é um verdadeiro hemofílico!”

  December 6, 2008
• MAURICIO FALA DE SEU MOMENTO CLICKA NO “Maurício” e depois no “ouvir” do Gengibre blood4! With Gengibre I  could record [...]

  A young man’s story / Reencontrando Maurício :)

  December 4, 2008

• Hi everyone , i am obay , and these days i am studying. my first exams approaching and i am busy. About ( my hemophilia ) i am used to it. i live [...]

  Obay from Jordan sends a message / Obay de Jordania envia uma mensagem

  November 5, 2008
• OBAY ABUKWAIK participated in the youth camp in Amman. I asked him to be my correspondant , a bridge between myself and the other members of the [...]

  A profile from a Jordanian fellow / Um perfil direto da Jordania

  October 24, 2008
• No grupo com os adolescentes brincamos de fazer muitas coisas diferentes como imitar SONS,  soltar as idéias, brincar de fazer de  conta (que, [...]

  Little face upside down / Brincando de cara ao contrário :)

  October 19, 2008