He told me that this experience made him pay more attention to himself, to how he is. It had made him more interested in learning about his  case or similar that happened to others.

A experiência de Obay, que teve uma reação alérgica ao Plasma (no centro dele, ele tomava plasma para su hemofilia B grave) que fez com que ele não conseguisse respirar , o fez pensar mais sobre si mesmo, sobre aprender mais. Ficou mais interessado e assumindo melhor sua condição, indo atras de informações e compartilhando com outros. Este site www.mybloodbrothers.com ajuda, une e representa uma ótima iniciativa para se relacionar com outros hemofílicos no mundo, os que se interessam e os familiares.

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About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I am back with news! life continues with its adventures... I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 32 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, 2026 updated version where I added new topics like Inhibitors and novel treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009-2014 Done !exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. 2) P-TET (Pediatric Thrombosis Educational Tool) , for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) Done: systematic review for the Cochrane Collaboration :"psychological interventions for people with hemophilia and their families" 5) Actually I counsel people who wants to perform as competition level athlete and collaborate with them seeking wellness and goals On a more personal level I have 3 three great not anymore children :) Danaê 35, Rubi 29 and Iggy 27 and i am since 2019 a pole sport athlete at a national and international level. I love it! also To walk and look for shells on a beach and discovering deserts...:)

One response »

  1. obay wael's avatar obay wael says:

    iam happy to share this with you guys
    and iam looking forward to hear from you all.
    thanks,

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