Durante o acantonamento Alexandre, que tem hemofilia A leve (mais de 5% de fator VIII no sangue) foi uma novidade para o resto dos jovens que tinham hemofilia grave. Eles ríam e ficavam brincando que Alexandre “era falsificado, do Paraguai!!” 🙂 porque não sangrava tanto quanto eles durante o ano!
Todos foram aprendendo a conhecer mais sobre as DIFERENÇAS DENTRO DE UMA MESMA DISFUNÇÃO DA COAGULAÇÃO… E AO FINAL DOS 2 DIAS NINGUÉM SE MACHUCOU, NINGUEM PASSOU MAL! AO CONTRÁRIO SE DIVERTIRAM MUITO.
Alexandre and Vik my dear collegue social worker 🙂
In that beautiful place, differences appeared when the other fellows with all severe Hemophilia discovered that Alexandre was a mild hemophiliac. They teased him and called him false -hemophiliac (everything with good humour and fun of course), and with a little bit of envy because he didn´t bleed as much as them during the year…
It was a good opportunity to learn about DIFFERENCES IN A SAME DISORDER. And at the end of the camp, everybody , mild and severe, could enjoy the stay without getting hurt or having a serious bleed. Only Wgner, 13, had to take factor 8 to prevent a start of heat and swolleness in an elbow.
About frederica cassis
My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium.
I am back with news! life continues with its adventures...
I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 32 years now. Graduated in Clinical Psychology in
1991, I specialized in Junguian Psychology and in Hemophilia since then.
LATEST PROJECTS:
1) Launching IN-HEMOACTION flash cards, 2026 updated version where I added new topics like Inhibitors and novel treatments, physiotherapy and a some playful activities like video games!
2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009-2014 Done !exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process.
2) P-TET (Pediatric Thrombosis Educational Tool) , for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success.
3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family"
4) Done: systematic review for the Cochrane Collaboration :"psychological interventions for people with hemophilia and their families"
5) Actually I counsel people who wants to perform as competition level athlete and collaborate with them seeking wellness and goals
On a more personal level I have 3 three great not anymore children :) Danaê 35, Rubi 29 and Iggy 27 and i am since 2019 a pole sport athlete at a national and international level. I love it! also To walk and look for shells on a beach and discovering deserts...:)
BLOOD 4 
This view from the place was so relaxing..
Eu lembro dos comentários dos meninos e a presença do Alexandre lá foi mais uma lição para todos nós! Mesmo entre pessoas com o mesmo problema, ninguém é igual a ninguém e cada um deve respeitar os limites e o espaço dos outros.
Achei muito bom quando ele se impôs e explicou pra cada um porque ele é hemofílico, sem ligar para piadinhas ou comentários de ninguém.
Ricardo