OBAY ABUKWAIK participated in the youth camp in Amman. I asked him to be my correspondant , a bridge between myself and the other members of the workshop! He is 19 years old, he studies Biotechnology and Genetic Engeneering….he is very much involved in all what has to do with improvement in treatment for hemophilia in general. He has moderate hemophilia B himself.
He likes swimming and watching TV. His dream is to have factor IX at home for a quick treatment and consequently more spare time to do other activities! 🙂
OBAY tem hemofilia B moderada e ele aceitou ser meu correspondente com o que acontece com os outros rapazes do workshop em que participei em Agosto em Amman.
Ele fala e escreve bem em Inglês , estuda Biotecnologia e Engenharía Genética. Ele anseia por progressos na área do tratamento para hemofilia. Ele gostaria de ter fator em casa para poder administrar quando necessário.
About frederica cassis
My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium.
I am back with news! life continues with its adventures...
I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 32 years now. Graduated in Clinical Psychology in
1991, I specialized in Junguian Psychology and in Hemophilia since then.
LATEST PROJECTS:
1) Launching IN-HEMOACTION flash cards, 2026 updated version where I added new topics like Inhibitors and novel treatments, physiotherapy and a some playful activities like video games!
2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009-2014 Done !exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process.
2) P-TET (Pediatric Thrombosis Educational Tool) , for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success.
3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family"
4) Done: systematic review for the Cochrane Collaboration :"psychological interventions for people with hemophilia and their families"
5) Actually I counsel people who wants to perform as competition level athlete and collaborate with them seeking wellness and goals
On a more personal level I have 3 three great not anymore children :) Danaê 35, Rubi 29 and Iggy 27 and i am since 2019 a pole sport athlete at a national and international level. I love it! also To walk and look for shells on a beach and discovering deserts...:)
BLOOD 4 
hi again
i forgot to say that i like to heare from you
iam waiting your posts at :