1. I will do a mini literacy study with children with hemophilia for the Brazilian version of CHO-KLAT ( Canadian Hemophilia Outcomes -Kid’s Life Assessment Tool ). This will be a next step after the debriefing phase held successfully in November 2010 in the hemophilia Center of Hospital das Clinicas, FMUSP.
1. Depois de finalizar uma etapa importante do processo de validar o CHO-KLAT para a nossa realidade brasileira, surgiu a necessidade de elaborar um curto questionário sobre compreensão e leitura que irá ser aplicado ANTES de aplicar o CHO-KLAT. Este questionário que avalie a qualidade de vida das crianças e jovens com hemofilia, é geralmente auto-aplicado. Com esse mini questionário poderemos saber se a criança é capaz de ler e entender corretamente para poder responder bem as perguntas! boa iniciativa não? validar 100% :)†
2. I am studying about Systematic Reviews and with a group of physicians and psychologists from Italy and UK we could registered in Cochrane Collaboration this title Psychological Interventions for people with hemophilia and their family. A lot of work ahead!
This is the symbol of the COCHRANE Collaboration: the outside shapes represent a stylized uterus honoring the first studies the collaboration did in obstetric and perinatal cares. In the inside is a meta-analysis graphic of 7 studies.
2. Faço parte de uma projeto de Revisão Sistemática pela Colaboração Cochrane onde o título que registrei junto a um grupo de colegas psicólogos e médicos se chama: ‘Intervenções psicológicas para pessoas com hemofilia e suas famílias”. Estamos na fase da elaboração do Protocolo e este ano saberemos todos mais a respeito do qual ou que tipo de intervenções e estudos foram realizados na área do cuidado a pessoa com hemofilia.
3. My third project is called P-TET (Pedriatic-Thrombosis Educational Tool): a set of educational and playful way to learn about the disease and its care for children. It is inspired on my initial initiative called Hemoaction flash cards.
Here a taste of a card:
3. O projeto que segue é criar um baralho (P-TET) parecido ao Hemoação , ou seja um instrumento lúdico educativo para crianças que tiveram Trombose . Ou seja se bem é o oposto de o que uma criança com hemofilia padece: sangramentos longos e repetitivos, quem tem trombose deve tomar medicação para não ter outros episódios de “parada” de fluxo , ou ter coágulos obstrutivos…e deve aprender a se cuidar ja que certos efeitos colaterias da medicação pode levar a sangramentos também se nao tomarem precauções para evitar machucados.
About frederica cassis
My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium.
I am back with news! life continues with its adventures...
I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 32 years now. Graduated in Clinical Psychology in
1991, I specialized in Junguian Psychology and in Hemophilia since then.
LATEST PROJECTS:
1) Launching IN-HEMOACTION flash cards, 2026 updated version where I added new topics like Inhibitors and novel treatments, physiotherapy and a some playful activities like video games!
2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009-2014 Done !exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process.
2) P-TET (Pediatric Thrombosis Educational Tool) , for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success.
3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family"
4) Done: systematic review for the Cochrane Collaboration :"psychological interventions for people with hemophilia and their families"
5) Actually I counsel people who wants to perform as competition level athlete and collaborate with them seeking wellness and goals
On a more personal level I have 3 three great not anymore children :) Danaê 35, Rubi 29 and Iggy 27 and i am since 2019 a pole sport athlete at a national and international level. I love it! also To walk and look for shells on a beach and discovering deserts...:)
BLOOD 4 