Psychosocial Aspects of Hemophilia and Need for Comprehensive Care

Aspectos Psico-Sociais na Hemofilia e Necessidade de um Atendimento com Compreensão

2 of the slides that I presented….. 🙂

Novo Nordisk Haemostasis Symposium, Muscat, Oman, May 2012

Um diálogo, uma troca fluida…DEFININDO Hemofilia

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About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I am back with news! life continues with its adventures... I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 32 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, 2026 updated version where I added new topics like Inhibitors and novel treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009-2014 Done !exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. 2) P-TET (Pediatric Thrombosis Educational Tool) , for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) Done: systematic review for the Cochrane Collaboration :"psychological interventions for people with hemophilia and their families" 5) Actually I counsel people who wants to perform as competition level athlete and collaborate with them seeking wellness and goals On a more personal level I have 3 three great not anymore children :) Danaê 35, Rubi 29 and Iggy 27 and i am since 2019 a pole sport athlete at a national and international level. I love it! also To walk and look for shells on a beach and discovering deserts...:)

2 responses »

  1. Alessandra Torri's avatar Alessandra Torri says:

    O seu trabalho tem ALMA e vai alem de fronteiras…por vezes como um vento, e com calma como um sopro…e assim ensinando, compartilhando e trocando!!!! Parabéns, seu trabalho tem força!
    Linda foto e adorei a apresentação!

  2. minalys84's avatar minalys84 says:

    oh!I’m in this wonderful picture wearing the black and white T-shirt!
    Hi Fraderica, you’re great!
    I’m Amina from Algeria (north of Africa) I met you in Muscat and in Paris!

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