I guess the team work with our nurses, social worker and myself along with the moms during the first stages of Educating for Self-infusion both for the Prophylaxis program or just the Factor dose used at home…have brought good results! 
Quando trabalhei com o grupo das criancas sobre medos, percebi com alegria que nenhum mencionou ter medo de agulha ou de infundir o fator! O trabalho multi-disciplinar para a Educação para Profilaxia ou para o uso da DDU está dando certo. As mães e os pais estão cada vez mais participativos e felizes de ver que existem maneiras de criar filhos autônomos que sabem desde cedo se cuidar e se tratar. Estamos trabalhando bem acho :)!
O centro de hemofilia é uma segunda casa para os pais e seus filhos; a equipe toda está motivada para orientar e treinar desde as primeiras visitas. Ver e acompanhar o crescimento dos pequenos é um privilégio.
Each time I have to make some blood tests or receive a shot…i must confess that I have a flashback of my childhood where they used to grab me and force me ! maybe that’s why I like to PREVENT and explain everything so carefully, with details with kids, for example showing them the stuff we use at the center, allowing them to describe the sensations they have….
and it worked well for the children with hemophilia, with mine and with me! 🙂
I really believe that when people try (sometimes with the best intentions) to hide information, or try to trick a child to face something not pleasant…it is worse!
I remember reading years ago Kelly ‘s wonderful book “Raising a child with hemophilia” and who believes that no baby should receive more than few tries to find the vein…it is better to stop and start later or with another nurse.
Posted by frederica cassis on May 19, 2013 in children with hemophilia, education;health, EMOTIONAL PROPHYLAXIS, Fear, group therapy, HEMOAÇÃO em Português, hemophilia in pictures, SELF-INFUSION and tagged fear, FEAR OF NEEDLE, group therapy, parents and kids, Pimenta.
About frederica cassis
My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium.
I am back with news! life continues with its adventures...
I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 32 years now. Graduated in Clinical Psychology in
1991, I specialized in Junguian Psychology and in Hemophilia since then.
LATEST PROJECTS:
1) Launching IN-HEMOACTION flash cards, 2026 updated version where I added new topics like Inhibitors and novel treatments, physiotherapy and a some playful activities like video games!
2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009-2014 Done !exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process.
2) P-TET (Pediatric Thrombosis Educational Tool) , for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success.
3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family"
4) Done: systematic review for the Cochrane Collaboration :"psychological interventions for people with hemophilia and their families"
5) Actually I counsel people who wants to perform as competition level athlete and collaborate with them seeking wellness and goals
On a more personal level I have 3 three great not anymore children :) Danaê 35, Rubi 29 and Iggy 27 and i am since 2019 a pole sport athlete at a national and international level. I love it! also To walk and look for shells on a beach and discovering deserts...:)
BLOOD 4 
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Watch the video of the Pimenta’s ! one of the latest posts, under group therapy or children at Hospital das Clinicas. one of the relaxing moments of life..laughing
Oi Frederica!
Adoro teu blog, acesso todos os dias e sempre aprendo muito.
Um grande abraço.