• I am glad to announce , with my colleague psychologist Irene Fuchs from Argentina,  that since the launch of our booklet about [...]

  UPDATING : our booklet “Communication,Love and Sexuality” living with hemophilia / Noticias :”Amor, Sexo y Comunicación en Hemofilia”

  May 22, 2013
•  In  a group therapy  with  kids (8-10) in our Hemophilia center  on  the topic Fears, I was glad to see that none of them mentioned being [...]

  SELF-INFUSION vs FEAR OF NEEDLES Auto-infusão contra o medo das agulhas

  May 19, 2013
• 2012 AND 2013 GOOD SPECIAL YEARS FOR CHILDREN, YOUNG MEN WITH HEMOPHILIA LIVING IN BRAZIL Prophylaxis is  finally installed….units and [...]

  17th of Abril! Happy-GOOD day today and always

  April 16, 2013
• She is the older sister and she is  so cute! she wanted to be part of  her brother’s and little friends (remember little ones 1 and 2?) [...]

  “I learn about hemophilia, my brother has it”/ “Meu irmão tem hemofilia por isso aprendo”

  April 16, 2013

• It is possible to be what you are and  exercise different roles.Several questions from the audience from professionals such as nurse, pediatric [...]

  Blogueira e psicóloga: dá para juntar? / I am a blogger and psychologist in a panel at the WFH congress

  February 14, 2013
• Take a look at the WFH  website http:// www.wfh.org  and go to Hemoaction cards or Hemoaction online game.  An easy simple way to explain [...]

  Hemophilia explained with images : “HEMOACTION” flash cards/ Jogo de memória HEMOAÇÃO

  January 2, 2013
• Liquid photography….a bleeding ? a painting? or…well nature is beautiful and scary: this is an irruption of Nyamuragira volcano , [...]

  a photo to remind us the intensity of nature and ours! Para lembrar a intensidade da natureza…e a nossa própria!

  December 24, 2012
• 

  Made of 60.000 Band-Aids, a living blanket to make us wonder!/ A arte do artista McPhail: um cobertor feito por curativos!

  December 6, 2012

• Este projeto começou em 2011 onde foi apresentado em Kyoto  no Pre Congresso do ISTH. Os enfermeiros acharam barbara a idéia de ter, como para [...]

  P-TET through the process of validation / Material educativo para crianças em tratamento para trombose P-TET em fase de validação

  November 25, 2012
• coping with pain

  Sobre a Dor… conversando com adolescentes e adultos/About Pain: some tips from young men´s stories

  November 8, 2012
• SNAKES, HIGHTS, PHANTOMS,  red SPIDERS AND MORE SNAKES (naja)! we talked about why is necessary to be scared sometimes and when “being [...]

  Fears in boys between 7 -11 ;0/ Os medos dos meninos do grupo Pimenta!!!!

  November 1, 2012
• Maxwell Holyoke ‘s “Enough  said”….shows a natural, rare and for so long, mysterious, phenomenon: [...]

  Bloody rain / Chuva de sangue?

  October 27, 2012

• Kids and teenagers with hemophilia are often concerned about outdoor activities or sports…so having a puppy , or a bird or a squirrel of [...]

  The experience of taking care of a pet / A boa experiência de ter um animal de estimação

  October 16, 2012
• D as Dependence : ”  Trust in somebody, reliance on something , state of  having to be supported by others or need  of [...]

  D as Dependence / D como Dependência ( from A to Z) 2

  October 15, 2012
• Este pássaro macho se dedica a preparar o ninho para que a fêmea goste dele para acasalar!! :)Podemos aprender muito observando o reino animal; [...]

  Preparando o ninho / petit à petit l´oiseau fait son nid

  October 6, 2012