It is possible to be what you are and exercise different roles.Several questions from the audience from professionals such as nurse, pediatric hematologist and physiotherapist were addressed to me because I am a health care professional working in a multidisciplinary team. HCPs are more and more interested to know how to manage communication and information through the use of groups in FBook or messages.I said that i saw myself as a bridge between the young man or a parent and the hemophilia center. I create bonds with who wants to contact them and I promote self knowledge, self management with the help of the care team. It was very interesting meeting!!! 🙂
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Coping with hemophilia with the use of images
É possível ser o que a gente é e exercer vários papéis. Um interessante evento aconteceu em Paris, organizado pela Bayer, onde se reuniram vários blogueiros para falar sobre Media social, internet e de que forma podem e estão contribuindo para a comunidade de hemofilia. Vide o “convite” . Várias perguntas da plateia foram dirigidas a mim que era a única profissional da saúde que tinha um blog; as perguntas eram sempre dúvidas de outros profissionais como enfermeiras, fisioterapeutas e pediatra hematologista que queriam saber de que foram manejar o tema da comunicacão via grupos no Facebook, ou mensagens de texto. MUITOS DESAFIOS! eu disse que nós estamos para ser a PONTE , facilitar o diálogo entre o Centro de atendimento e o menino que tem hemofilia, estamos para se comunicar criando vínculos. PODEMOS PROPORCIONAR informacões mas não tratamento.
About frederica cassis
My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium.
I am back with news! life continues with its adventures...
I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 32 years now. Graduated in Clinical Psychology in
1991, I specialized in Junguian Psychology and in Hemophilia since then.
LATEST PROJECTS:
1) Launching IN-HEMOACTION flash cards, 2026 updated version where I added new topics like Inhibitors and novel treatments, physiotherapy and a some playful activities like video games!
2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009-2014 Done !exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process.
2) P-TET (Pediatric Thrombosis Educational Tool) , for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success.
3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family"
4) Done: systematic review for the Cochrane Collaboration :"psychological interventions for people with hemophilia and their families"
5) Actually I counsel people who wants to perform as competition level athlete and collaborate with them seeking wellness and goals
On a more personal level I have 3 three great not anymore children :) Danaê 35, Rubi 29 and Iggy 27 and i am since 2019 a pole sport athlete at a national and international level. I love it! also To walk and look for shells on a beach and discovering deserts...:)
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