D as Dependence : ”  Trust in somebody, reliance on something , state of  having to be supported by others or need  of support…”

If you take a look at most psycho social professionals   and nurses’ concerns in the treatment of PWH (people with hemophilia), you will find that it is about PROMOTING  autonomy / independence. Independence in self care is  learning to self-infuse clotting factor, is the correct registration of the doses used, taking quickly the best measures for treatment when bleeding, and creating his own world of interests, to work, to  love and produce as a  citizen.

A person living with hemophilia  will think sometimes that he has been probably, in childhood, protected or over protected by his parents: fears of having a dangerous bleeding (in the head, or abdominal for example) is normal. But, life urges us to live it, to have relationships that make us feel important and loved. Living our lives is stronger than the fear of having a bleed.

But if we are living we have to recognize that we are all INTER-DEPENDENTS: we depend on our companion (emotionally), we count on others, they count on us…we need help sometimes (nothing wrong with that), because we are all human beings that can get sick, disable to do things occasionally.

So, even if a person with hemophilia has a disability or is going under treatment of HCV for ex. , he should be glad to be able to rely on  his beloved and friend’s help.  Even needy he can also GIVE good things in return to his family, his friends…..

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D como Dependência : ” do latim: pendere que significa ‘pender de’ ou ‘estar pendurado’… ou derivar de, proceder, contar com……”

Todos os trabalhos em psicologia e enfermagem com as pessoas portadoras de hemofilia enfatizam a busca de AUTONOMIA e independência em relação a maneira de viver com a hemofilia: isso significa desde o mais cedo possível ensinar sobre a disfunção, cómo explicá-la , cómo aplicar o fator, cómo detectar precocemente um sangramento, não deixar os lados difíceis da hemofilia, ou Von Willebrand afetar negativamente o desenvolvimento do jovem.

Mas, como psicóloga,  vou ressaltar o lado positivo da DEPENDÊNCIA: na verdade, se olharmos atentos, todos somos INTER-DEPENDENTE um do outro, um com um serviço de saúde, com uma instituição acadêmica (escola, facu etc) e precisamos dos outros como os outros precisam da gente.

No caso da hemofilia, quero relembrar que o portador tem de saber PEDIR ajuda quando a necessita! a dependência destrutiva é quando a pessoa não consegue viver e produzir sem a presença do outro. Quando estamos AMANDO não dá para não depender emocionalmente do outro por exemplo, mas isso não significa CONTROLAR o outro ou NÃO TER VIDA PESSOAL


Posted by on October 15, 2012 in From A to Z for hemophilia, hemophilia, love, psychology and tagged , , , , , .

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About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I am back with news! life continues with its adventures... I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 32 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, 2026 updated version where I added new topics like Inhibitors and novel treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009-2014 Done !exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. 2) P-TET (Pediatric Thrombosis Educational Tool) , for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) Done: systematic review for the Cochrane Collaboration :"psychological interventions for people with hemophilia and their families" 5) Actually I counsel people who wants to perform as competition level athlete and collaborate with them seeking wellness and goals On a more personal level I have 3 three great not anymore children :) Danaê 35, Rubi 29 and Iggy 27 and i am since 2019 a pole sport athlete at a national and international level. I love it! also To walk and look for shells on a beach and discovering deserts...:)

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