• This is card number 23 of Hemoaction Flashcards: MUSIC !!! MOVE YOUR BODY AND FEEL THE RYTHM …. ANYONE CAN AND MUST ENJOY THAT! MUSIC IS A [...]

  Alegria / Joy

  May 2, 2010
• This time we discussed  about decisions like management of the “ddu” (dosis domiciliar única) or (first home self-infusion dosis): [...]

  Sangrilá 3! Together is easier to share ideas and find ways/ Sangrilá 3 mas 4;) conversando se llega lá…

  April 12, 2010
• One of the participant, César told us  that when he was a kid his mom used to called him “onça pintada” , little jaguar, because [...]

  SANGRILA : a little story of the group / Grupo Sangrilá : uma pequena história :)

  April 5, 2010
• Today Saturday 27th of March 010: the boys are now adults and they want to meet once a month in my office to form a Social network group: [...]

  Our project has a name!! gathering young citizens to talk and solve things out!/ A rede SANGRILÁ nasceu!

  April 5, 2010

• A story from last year in March where usually, Henrique 5, is calm, cooperative with the nurses to participate in his self-infusion of factor [...]

  Some days are tough…..Alguns dias são mais difíceis que outros…

  March 20, 2010
• He told me that this experience made him pay more attention to himself, to how he is. It had made him more interested in learning about his  [...]

  Obay’s story : another letter

  February 27, 2010
• Ed, is 23 and he stopped studying in high school…he had to work. Now , he is a young father with a baby girl to raise and he wants to [...]

  Ed is going back to school!/ Supletivo na veia: quero melhorar minha vida :)

  December 3, 2009
• Siblings in a family with hemophilia have their space too! And it is a Must. A brother or a sister must get involved in hemophilia in the way [...]

  siblings: our first partners / o- a irmã(o): o/ a primeiro(a) sócio/a! ;)

  November 11, 2009

• FELIPE 15, kAIO, 14, Breendon 13…. cada um tem uma história para contar: Felipe está estudando, tem vários amigos atualmente (porque na [...]

  Adolescents first….with hemophilia, ok just one more aspect / Adolescente primeiro…com hemofilia A , sím! más é só mais um dado! ;0

  March 14, 2009
• MAURICIO FALA DE SEU MOMENTO CLICKA NO “Maurício” e depois no “ouvir” do Gengibre blood4! With Gengibre I  could record [...]

  A young man’s story / Reencontrando Maurício :)

  December 4, 2008
• FIRST YOUTH CAMP WITH THE BOYS 2008 13 BOYS BETWEEN 13 AND 16. MOST OF THEM WITH SEVERE HEMOPHILIA A, only 3 with mild. They had so much fun, [...]

  We are back from the CAMP :) / De volta para casa depois de um lindo ACANTONAMENTO

  December 1, 2008
• OUR FIRST CAMPING 2008  This is a big day listen here by clicking on the title! VAMOS SAIR DAQUI A POUCO! A FUNDAÇÃO VANZOLINI E UMA DE SUAS [...]

  Our first CAMP with 15 teenagers!!/ Acantonamento 2008 com 15 jovens

  November 29, 2008

• FAMILIA EM REBULIÇO!! OUÇAM! clicka aqui! SORRY! IT IS TALKED IN PORTUGUESE: mother Irene explaining how it is difficult sometimes to deal with [...]

  Mãe aliviando a garganta! Brothers and brothers with Mom in the middle

  November 27, 2008
• Depoimento do Wallisson Outro amigo falando para nós…vamos ouvir

  Wallisson speaks to you guys…in Portuguese :)/ Wallisson e Rafael falam para nós

  November 6, 2008
• Hi everyone , i am obay , and these days i am studying. my first exams approaching and i am busy. About ( my hemophilia ) i am used to it. i live [...]

  Obay from Jordan sends a message / Obay de Jordania envia uma mensagem

  November 5, 2008