Siblings in a family with hemophilia have their space too!
And it is a Must. A brother or a sister must get involved in hemophilia in the way that they have to know about the disfunction as much as their brother. They don’t have hemophilia which means that they must have their life and activities that are suitable for them. If they like rugby they ‘ll do rugby, play soccer , practice boxe or play with his brother who has hemophilia in a gentle way with a video game!
What I want to say here is that the fact that one child is allowed to practice an activity and the other one isn’t , can be considered by the family as a good oportunity to work different educational topics as:
differences between people, generosity, tolerance, coping with feelings like envy, jealousy, anger, frustration, creativity…
Let’s realize that who has a family with brothers and sisters learn quicker to share, to negotiate, to discuss issues and find solutions.
All that because a child with hemophilia has partners to deal with in order to get from the parents what they want and need! 🙂 let’s remember also that siblings unite “against” the parents sometimes! and it is wise from the parents to let this happen.
Ter uma irmã ou um irmão é a primeira experiência de sociedade para alguém dentro de uma familia. A importância dada ao fato de ter um irmão é independente dele ter ou não uma disfunção!
O irmão é o primeiro companheiro diferente de mim mesmo que tem suas peculiaridades, suas qualidades e defeitos…e tenho que dividir com ele ou ela o afeto de meus pais 🙂
Se tem hemofilia, ele terá que se adaptar as atividades que lhe são permitidas e benéficas…e o outro irmão que não tem hemofilia deverá também traçar seu caminho e realizar tudo o que puder! pode ser difícil para os pais, ver as diferenças entre os filhos..más CORAGEM, somente permitindo que cada um deles se expresse e se desenvolva COMO PODE E DEVE, somente assím, nós pais podemos criar seres independentes e fortes espiritualmente.
ACEITEMOS as limitações para, a partir delas, fluir nas profundezas da vida nesta terra.
Paz a todos.
About frederica cassis
My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium.
I am back with news! life continues with its adventures...
I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 32 years now. Graduated in Clinical Psychology in
1991, I specialized in Junguian Psychology and in Hemophilia since then.
LATEST PROJECTS:
1) Launching IN-HEMOACTION flash cards, 2026 updated version where I added new topics like Inhibitors and novel treatments, physiotherapy and a some playful activities like video games!
2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009-2014 Done !exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process.
2) P-TET (Pediatric Thrombosis Educational Tool) , for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success.
3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family"
4) Done: systematic review for the Cochrane Collaboration :"psychological interventions for people with hemophilia and their families"
5) Actually I counsel people who wants to perform as competition level athlete and collaborate with them seeking wellness and goals
On a more personal level I have 3 three great not anymore children :) Danaê 35, Rubi 29 and Iggy 27 and i am since 2019 a pole sport athlete at a national and international level. I love it! also To walk and look for shells on a beach and discovering deserts...:)
BLOOD 4 
Absolutely! Partly, we try to involve the Toddles in his brother’s infusions, and partly we just say – hey, you are more than the hemophilia kid’s brother. You are yourself.
I am glad the short post made sense to your beliefs…thank you for leaving your response.
bye bye
frederica