TURTLE
YOU DO YOUR BEST
YOU DON’T REST
TICKLE TICKLE !
ALLRIGHT
FACTOR IS WHAT YOU’LL GET
FOR A PERFECT FIBRIN NET !
December 16, 2008
Humor for blood donation / Campanha :) para doar sangue : SEMPRE FALTA SANGUE NA época das festas!! doe e salve uma vida
OS MOSQUITOS CONHECEM O VALOR DO SANGUE !
As pessoas com hemofilia e muitos outros (pode ser eu um dia…) precisam do sangue humano (ainda) para a fabricação do remédio chamado Fator VIII ou IX da coagulação.
People with hemophilia in developing countries depend on blood donors for the manifacture of clotting Factors VIII and IX.
Practising some excercices with Marcia our physiotherapist
then the swimming pool
and a circle to discuss love, friendship,school,hemophilia, social problems like use of drugs (alcohol, cigarettes, marihuana etc).
Durante o acantonamento Alexandre, que tem hemofilia A leve (mais de 5% de fator VIII no sangue) foi uma novidade para o resto dos jovens que tinham hemofilia grave. Eles ríam e ficavam brincando que Alexandre “era falsificado, do Paraguai!!” 🙂 porque não sangrava tanto quanto eles durante o ano!
Todos foram aprendendo a conhecer mais sobre as DIFERENÇAS DENTRO DE UMA MESMA DISFUNÇÃO DA COAGULAÇÃO… E AO FINAL DOS 2 DIAS NINGUÉM SE MACHUCOU, NINGUEM PASSOU MAL! AO CONTRÁRIO SE DIVERTIRAM MUITO.
Alexandre and Vik my dear collegue social worker 🙂
In that beautiful place, differences appeared when the other fellows with all severe Hemophilia discovered that Alexandre was a mild hemophiliac. They teased him and called him false -hemophiliac (everything with good humour and fun of course), and with a little bit of envy because he didn´t bleed as much as them during the year…
It was a good opportunity to learn about DIFFERENCES IN A SAME DISORDER. And at the end of the camp, everybody , mild and severe, could enjoy the stay without getting hurt or having a serious bleed. Only Wgner, 13, had to take factor 8 to prevent a start of heat and swolleness in an elbow.
CLICKA NO “Maurício” e depois no “ouvir” do Gengibre blood4!
With Gengibre I could record some of Maurício’s news: He is 20 years old and he was so excited to tell me that he had a job, that he was not very satisfied and looking for a better one, not that close of home but with better conditions. Although he had had more bleedings lately he was concerned about his independence and about starting again his physiotherapy.
What pleased me so much is that he was so confident, so glad of improving his life…I know him since he was
6 !
FIRST YOUTH CAMP WITH THE BOYS 2008
13 BOYS BETWEEN 13 AND 16. MOST OF THEM WITH SEVERE HEMOPHILIA A, only 3 with mild. They had so much fun, flowing in the water, discussing the topics with us, participating in different sport activities!! 2 days of pure energy and joy 🙂
ACANTONAMENTO 2008
13 GAROTOS ENTRE 13 E 17anos , 3 COM HEMOFILIA A LEVE E O RESTO COM HEMOFILIA A GRAVE.
13 garotos sensacionais!!!animados, participativos e felizes convivendo pela primeira vez juntos e com os profissionais do centro onde recebem atendimento e com as pessoas do curso de Gerência de Projetos da Fundação Vanzolini 🙂 algumas fotos PARA UM BOM COMEÇO DE SEMANA!!!!!
Professor João Arantes brincando com 3 rapazes que não deixam barato não!! 🙂
This is one of the super moments in the pool! prof. Arantes who is having a hard time with the boys! hehehe
go! Paulo was one of the important member of the team. He is a “cheer leader” and is coordinating the game. Kaio is on the move!!
Vai! Paulo foi muito importante para animar e coordenar as tarefas conosco da equipe. Aqui vemos o Kaio em pleno movimento!
OUR FIRST CAMPING 2008 
This is a big day listen here by clicking on the title!
VAMOS SAIR DAQUI A POUCO! A FUNDAÇÃO VANZOLINI E UMA DE SUAS TURMAS DE ESTUDANTES DE GERENCIAMENTO DE PROJETOS CONSEGUIRAM AGILIZAR ESTE PROJETO 2 DIAS FORA !!!
NOSSA EQUIPE DO centro de Hemofilia do HC estará também presente ativamente!!!
FAMILIA EM REBULIÇO!! OUÇAM! clicka aqui!
SORRY! IT IS TALKED IN PORTUGUESE: mother Irene explaining how it is difficult sometimes to deal with her boys Daniel 7 with hemophilia and Gabriel 5 and a half without! the elder one had the bad habit to fight with his brother and the other one wasn´t allow to fight back because his brother “has hemophilia”!!!
Man RAY, (1890-1976) fotógrafo e pintor surrealista.
Imaginou uma nuvem assim?
November 17, 2008
Primeiros socorros para pequenos dodóis… First aids for little bumps and scratches
Se o machucado for leve, como um “ralado”, uma simples escorriação ou um”roxo” , a criança com hemofilia não precisa tomar fator.
Ela consegue coagular bem para este tipo de machucado.
Na dúvida ligue para seu centro de hemofilia e pergunte.
If the child with hemophilia gets a little bump. or a scratch or even start bleeding , he won´t be needing Infusion of Factor always. For small injuries , first aids can be enough.
I recommend, nevertheless a good communication with your hemophilia center to ask for advice.
Eis o que se faz:These are the basic first aids:
As a care agent , and I explained that in my monograph Psychosocial care for people with hemophilia,
i always assure myself that parents step out of the consulting room with:
The sensation that them and myself form a team to learn about parenting and prevent unnecessary hard experiences.
We must fight the Ignorance of simple facts about the phaseS of development and of hemophilia as a blood clotting disorder to live better.
THE MONOGRAPH CAN BE DOWNLOADED FROM THE BLOG WWW.BLOOD4.WORDPRESS.COM, OR CAN BE DELIVERED BY THE WFH WWW.WFH.ORG
educational BOOKS AT WWW.KELLYCOM.COM
BLOOD 4 