http://www.novonordisk.com/about_us/improving_haemophilia/research-outline-and-results.asp
Last July in Kyoto the International Advisory Board of HERO initiative and the support and sponsor of Novo Nordisk A/S launched 3 posters explaining the 3 phases of the work. A lot is being done right now in different part of the world….a lot is to be done in different part of the world too! We, Iorio, Queirol, Forsight and Cassis on behalf of the IAB have the pleasure to present this to you. CLICK and Download 🙂
Julho passado fui para Kioto no congresso ISTH; lá apresentamos os 3 posters do projeto HERO! Vale a pena o quanto foi feito, o quanto se está neste exato momento realizando em diferentes países e, o quanto ainda está por se fazer! Tudo sempre com seriedade e alegria para dar o melhor da nossa experiência para a comunidade das pessoas e familias que vivem com hemofilia. Convido a todos a fazer o download no endereço acima!
About frederica cassis
My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium.
I am back with news! life continues with its adventures...
I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 32 years now. Graduated in Clinical Psychology in
1991, I specialized in Junguian Psychology and in Hemophilia since then.
LATEST PROJECTS:
1) Launching IN-HEMOACTION flash cards, 2026 updated version where I added new topics like Inhibitors and novel treatments, physiotherapy and a some playful activities like video games!
2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009-2014 Done !exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process.
2) P-TET (Pediatric Thrombosis Educational Tool) , for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success.
3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family"
4) Done: systematic review for the Cochrane Collaboration :"psychological interventions for people with hemophilia and their families"
5) Actually I counsel people who wants to perform as competition level athlete and collaborate with them seeking wellness and goals
On a more personal level I have 3 three great not anymore children :) Danaê 35, Rubi 29 and Iggy 27 and i am since 2019 a pole sport athlete at a national and international level. I love it! also To walk and look for shells on a beach and discovering deserts...:)
BLOOD 4 