Here at the FUNDECH (Foundation of Pwh of Ecuador in Quito) i held the workshop for parents, their kids and to young leaders of the foundation.
Aqui, en este espaço bem bonito da Fundech, encontrei desta vez pais com suas crianças, adultos e professionais da própria fundação.
An interesting topic of a father with a 12 years old boy was: – if I like sports as ever and my son can’t practice them, should I quit? to not upset him or generate envy…?”
Uma pergunta muito interessante de um pai com um filho de 12 anos :” – Eu sempre gostei e pratiquei esportes, más o fato que meu filho não pode os mesmos que eu significa que seria melhor eu como pai parar?”para não criar conflitos , enveja ou malestar?”
My advice as a starting point is to Raise our children within the respect of the differences and characteristics of each one, including the parents!
So, I told him, that as a father the best example is to continue practicing what he always liked, so that ADMIRATION can take the place of sadness, or negative envy (because you all know that ENVY can be a positive trigger too, if well understood, for self improvement )
Anyway the topic ‘Suitable activities, in and outdoor ones for kids with severe hemophilia A was discussed intensively.
and my colleague Roxana Psychologist playing and teaching
About frederica cassis
My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium.
I am back with news! life continues with its adventures...
I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 32 years now. Graduated in Clinical Psychology in
1991, I specialized in Junguian Psychology and in Hemophilia since then.
LATEST PROJECTS:
1) Launching IN-HEMOACTION flash cards, 2026 updated version where I added new topics like Inhibitors and novel treatments, physiotherapy and a some playful activities like video games!
2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009-2014 Done !exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process.
2) P-TET (Pediatric Thrombosis Educational Tool) , for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success.
3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family"
4) Done: systematic review for the Cochrane Collaboration :"psychological interventions for people with hemophilia and their families"
5) Actually I counsel people who wants to perform as competition level athlete and collaborate with them seeking wellness and goals
On a more personal level I have 3 three great not anymore children :) Danaê 35, Rubi 29 and Iggy 27 and i am since 2019 a pole sport athlete at a national and international level. I love it! also To walk and look for shells on a beach and discovering deserts...:)
and my colleague Roxana Psychologist playing and teaching
BLOOD 4 
Great work Frederica, keep it up. After all we are there to spread the importance of psychosocial support in any chronic disorder around the world, and in this case hemophilia!