photo-258as 3 mulheres de GeovanaGeovana, 5 years old drew me (the one at the right :), the secretary of our center Val and the 3rd one is Lais the voluntary that plays with them. Thank you for drawing so cutely!!

I met Lucimara, in 2000, she was in her early twenties, single mother with a one year-old boy : Guilherme! this little one in the picture…he is now almost 11 and has going through several head surgery  because of internal bleedings when baby.Today, he is a smart kid, goes to school, plays with friends and has a sister Giovana, 6. Lucimara is a woman that I admire a lot.  She  grew up, learned everything she could about hemophilia, she did the course with our nurse Eliane to learn how to infuse factor to her son, she changed job, got a better one, and she is an independant woman.

I remember the first time she was in my little office at the Center and she was always so scared of any  normal movement of her little boy, afraid of everything….well, look at her face now 🙂

Conhecí Lucimara em 2000, quando ela veio fazer a sua primeira consulta para Guilherme o filhinho Guilherme, na época com um ano de idade. Hoje , como podem ver na foto ele é um fofo, esperto, leva a vida de qualquer criança de 10 anos! Mas se vocês souberam pelo que ele passou nos primeiros anos de vida: 5 cirurgias na cabeça , veia com acesso difícil teve que colocar durante 2 anos e meio um catéter e tudo isso com a mãe solteira, lutando por um trabalho mais digno, lutando por sua independência e  por uma vida digna. Giovana nasceu ha 6 anos e assim a familia cresceu.

Lembro da Lucimara na sua primeira visita, pulava da cadeira de mêdo cada vez que o Guilherme fazia um movimento !

olhem para a cara dela agora….!:) bonita e serena … THIS DRAWING IS FROM TODAY  at age 9! his flying motocycle and sportive car going home!!!locomoção do Guilherme


Posted by on March 24, 2010 in children with hemophilia, hemophilia, maman, mother. mãe and tagged , , , .

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About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I am back with news! life continues with its adventures... I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 32 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, 2026 updated version where I added new topics like Inhibitors and novel treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009-2014 Done !exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. 2) P-TET (Pediatric Thrombosis Educational Tool) , for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) Done: systematic review for the Cochrane Collaboration :"psychological interventions for people with hemophilia and their families" 5) Actually I counsel people who wants to perform as competition level athlete and collaborate with them seeking wellness and goals On a more personal level I have 3 three great not anymore children :) Danaê 35, Rubi 29 and Iggy 27 and i am since 2019 a pole sport athlete at a national and international level. I love it! also To walk and look for shells on a beach and discovering deserts...:)

One response »

  1. vick's avatar vick says:
    February 13, 2009 at 7:41 am

    Fred, parabéns por você valorizar a história de vida desta mãe, ela é forte, é batalhadora, é guerreira é vencedora.
    Todo meu amor e carinho para essa família…..

    Reply

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