Eliana  was  26 , married, with hemophilia B.  She wrote this message knowing that she had to treat her liver attacked by the HCV (virus of hepatites C)…it´s a message of hope and courage. Quoting: “people with hemophilia have  to be very  patient. People with hemophilia B never give up!”

March: she would be 29 years old.
I just want to tell you a part of her life story: During the treatment she discovered that she was pregnant. Her little daughter was borned pre-mature but survived and is well…Eliana almost 2 years after Victoria birth , died of liver cancer on the 15 of September 2006.
eliana.jpg

I saw Hellen-Victoria when she was born, the strenght of this little being holding my hand, I have been with Eliana, by her side…I thought she could live for many more years and be with her family…but she left this planet earth . I miss her smile, her sense of humour…goodbye my friend

Eliana tinha 26 anos, casada, trabalhava tomando conta de uma bomboniere e tinha hemofilia B. Ela escreveu esta mensagem no seu desenho sabendo que estava precisando de tratamento para o vírus da hepatite C : uma mensagem de coragem e de esperança ” Os pacientes com hemofilia têm que ter muita paciência. As pessoas com hemofilia B nunca desistam”.

Março: ela tería 28 anos. Quero que vocês conheçam um pouco da história dela: durante o tratamento para hepatite ela percebeu que estava grávida. Foi adiante e teve a Hellen Vitória (o nome diz tudo!) que nasceu prematura e sobreviveu e está crescendo forte e firme.

Lembro de ter segurado várias vezes a sua maozinha pequenininha e acompanhei Eliana durante o processo.

Depois do aniversário de 2 anos de Vitória, Eliana estava com dores muito fortes…o cancer tinha tomado conta do fígado….e ela faleceu no dia 15 de Setembro de 2006.

Achei que ela pudesse viver muitos e muitos mais anos…más não deu. Ela partiu e meu coração dói…más também re-faço a idéia dela rindo, com um senso de humor bem peculiar dela e de todas as pessoas que sabem que não vão ficar por muito tempo…re-faço minha a idéia da morte e sei que se bem partiu do planeta terra, ela continua viva na imagem que tenho dela.  Aos deuses!

eliana.jpg

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About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I am back with news! life continues with its adventures... I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 32 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, 2026 updated version where I added new topics like Inhibitors and novel treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009-2014 Done !exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. 2) P-TET (Pediatric Thrombosis Educational Tool) , for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) Done: systematic review for the Cochrane Collaboration :"psychological interventions for people with hemophilia and their families" 5) Actually I counsel people who wants to perform as competition level athlete and collaborate with them seeking wellness and goals On a more personal level I have 3 three great not anymore children :) Danaê 35, Rubi 29 and Iggy 27 and i am since 2019 a pole sport athlete at a national and international level. I love it! also To walk and look for shells on a beach and discovering deserts...:)

One response »

  1. cazé's avatar cazé says:

    muito bonito.

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