So, gathering and listening to their concerns, experiences and doubts is fundamental. Orientation for adecuate, interesting  careers and jobs has been one of our prevalent goals the last 2 years at our hemophilia Center of  Hospital das Clinicas. Just to inform you: the most common jobs are 1) the family ones (father and son, brothers together) where the young man with hemophilia handles the clients/customers aspect, the administrative or and the comercial part.

2) Technology  (technicians in computers, web design, etc -i say etc because I am ignorant in these matters 🙂

3) Nurse and medical careers

4) Music business (musicians, band, singing , entertainment)

Picture 9Uma das grandes preocupações do nosso Centro de Hemofilia nas Clinicas, é orientar e acompanhar de perto a transição para a vida do primeiro trabalho, portanto a atenção começa nos anos anteriores, ou seja no colegial.

O grande receio dos meninos é não saber qual seria o melhor trabalho para eles, e depois como conseguir um emprego!

So para mencionar e dar algumas ideias dos tipos mais comuns de trabalho entre nossos adultos com hemofilia:

1) Trabalhos em empresas familiares: pais com filhos, ou entre irmãos : onde no caso o portador da hemofilia se encarrega da parte de atendimento ao cliente, fecha negócios, toma conta da parte contável, visita (se tem carro e está em boas condições físicas) clientes novos , etc

2) Informática (tudo o relacionado com as chamadas novas tecnologias: computação, web design, desenho industrial, etc)

3) Arte e música (músicos, bandas, entretenimentos)

4) Area administrativa e economia

5) Enfermagem e áreas relacionadas como laboratoriais por exemplo e ou farmaceuticas.

Este tema será abordado mais amplamente nos próximos posts (entrevistas, curriculum, cursos etc)Picture 6


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About frederica cassis

My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium. I am back with news! life continues with its adventures... I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 32 years now. Graduated in Clinical Psychology in 1991, I specialized in Junguian Psychology and in Hemophilia since then. LATEST PROJECTS: 1) Launching IN-HEMOACTION flash cards, 2026 updated version where I added new topics like Inhibitors and novel treatments, physiotherapy and a some playful activities like video games! 2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009-2014 Done !exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process. 2) P-TET (Pediatric Thrombosis Educational Tool) , for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success. 3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family" 4) Done: systematic review for the Cochrane Collaboration :"psychological interventions for people with hemophilia and their families" 5) Actually I counsel people who wants to perform as competition level athlete and collaborate with them seeking wellness and goals On a more personal level I have 3 three great not anymore children :) Danaê 35, Rubi 29 and Iggy 27 and i am since 2019 a pole sport athlete at a national and international level. I love it! also To walk and look for shells on a beach and discovering deserts...:)

One response »

  1. Ricardo's avatar Ricardo says:

    Oi Frederica! Eu adorei ver esse post debatendo sobre o futuro dos meninos! Fiquei emocionado em ter visto as fotos do Projeto V.I.D.A. que completou 1 ano no final de semana passado. Eu estou a sua disposição caso queiram dar palestras sobre o futuro profissional deles na área de Tecnologia da Informação, ok?

    Beijos!

    Ricardo

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