O que é HEMOFILIA? WHAT IS HEMOPHILIA, IN FEW SIMPLE WORDS?
Qual é a diferença entre hemofilia A ou B grave, moderada e leve? What is the difference between severe, moderate or mild hemophilia A or B?
O portador da hemofilia pode ter uma vida como qulquer cidadão? ou seja trabalhar, namorar, ter filhos , praticar atividade física?Who has hemophilia can lead a comun life as a citizen= work, love, have children, have hobbies and practice sport activities? what jobs, what kind of sports?
Hemofilia tem cura ou é uma disfunção crônica?Hemophilia has a cure or is a chronic blood clotting disorder?
De qué forma pode se lidar e tratar da hemofilia para viver o melhor possível com a disfunção da coagulação??? What is the best way to cope with hemophilia?
ANSWER THESE QUESTIONS (THE ANSWERS ARE IN MY BLOG…) AND SPREAD KNOWLEDGE (VERY BASIC QUESTIONS 🙂
RESPONDAM E ESPALHEM O CONHECIMENTO: ABRIL !!!!
About frederica cassis
My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium.
I am back with news! life continues with its adventures...
I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 32 years now. Graduated in Clinical Psychology in
1991, I specialized in Junguian Psychology and in Hemophilia since then.
LATEST PROJECTS:
1) Launching IN-HEMOACTION flash cards, 2026 updated version where I added new topics like Inhibitors and novel treatments, physiotherapy and a some playful activities like video games!
2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009-2014 Done !exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process.
2) P-TET (Pediatric Thrombosis Educational Tool) , for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success.
3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family"
4) Done: systematic review for the Cochrane Collaboration :"psychological interventions for people with hemophilia and their families"
5) Actually I counsel people who wants to perform as competition level athlete and collaborate with them seeking wellness and goals
On a more personal level I have 3 three great not anymore children :) Danaê 35, Rubi 29 and Iggy 27 and i am since 2019 a pole sport athlete at a national and international level. I love it! also To walk and look for shells on a beach and discovering deserts...:)