D like Discovering : ” find or learn about (a place, a fact ….) for the first time”
what can be done when a child discovers that he has a lot of bruises (his difference comparing to other kids) OR that he is CONSCIOUS that when he bleeds (because it is blood that he sees, or because he feels his ankle swollen for exemple..) he has to take his first infusion of factor 8 or 9? How to explain?
First: Explain showing images and tell him that his blood is slower in one thing : In STOPPING a bleeding
like a turtle .!
if he is older than 6 years old, he can start understanding a Process like a vein that is leaking and cells that have to stop the bleed; first come the PLATELETS
acting as a plug,
and then the fibrin net 
that needs factor infusion to get STRONG 
and stop the bleeding quicker
———————————————
D como Desafio : ” ??? o que é um desafio para uma pessoa com hemofilia??” para mim desafio é aquilo que te convida a tentar realizar!
Do Dicionário Etimológico de Da Cunha: ” DES-AFIO vem da palavra fidare em Latim que significa ‘confiar’! Por tanto desafio significa “não des-confiar, não receiar!!!!”
Alguns dos pacientes quando foram perguntados na minha salinha do ambulatório, responderam:
-desafio é levar uma vida normal
-é poder achar a veia e infundir o fator corretamente
-não machucar sério
-ir para faculdade ou ganhar sua independência financeira
About frederica cassis
My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium.
I am back with news! life continues with its adventures...
I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 32 years now. Graduated in Clinical Psychology in
1991, I specialized in Junguian Psychology and in Hemophilia since then.
LATEST PROJECTS:
1) Launching IN-HEMOACTION flash cards, 2026 updated version where I added new topics like Inhibitors and novel treatments, physiotherapy and a some playful activities like video games!
2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009-2014 Done !exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process.
2) P-TET (Pediatric Thrombosis Educational Tool) , for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success.
3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family"
4) Done: systematic review for the Cochrane Collaboration :"psychological interventions for people with hemophilia and their families"
5) Actually I counsel people who wants to perform as competition level athlete and collaborate with them seeking wellness and goals
On a more personal level I have 3 three great not anymore children :) Danaê 35, Rubi 29 and Iggy 27 and i am since 2019 a pole sport athlete at a national and international level. I love it! also To walk and look for shells on a beach and discovering deserts...:)
that needs factor infusion to get STRONG 
BLOOD 4 