“Jack did it! Yesterday before his baseball game Jack tried self-infusion again and got the vein. Under Allison’s tutelage, Jack has been working on self-infusion since he got home from camp a week ago and yesterday was THE DAY.
We are so proud of him. This is a huge step toward full self-sufficiency and ownership of his hemophilia care.
Congratulations Jack!!
Keep it up! “
THESE ARE THE WORDS OF HIS PARENTS AT http://www.redbleed.blogspot.com! BRAVO for another autonomous
and courageous boy!
Jack conseguiu auto-infundir o fator pela primeira vez sozinho e foi uma CELEBRAÇÃO para todos em casa! seus pais escrevem no blog www.redbleed.blogspot.com, que estão muito orgulhosos dele! é mais um passo até a autonomía e a responsabilidade pelo seu tratamento.
PARABÉNS!!! e okbaal kol el awlaad el alam! que isso possa acontecer para todos os meninos do mundo que têm hemofilia!(esse é meu desejo)
About frederica cassis
My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium.
I am back with news! life continues with its adventures...
I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 32 years now. Graduated in Clinical Psychology in
1991, I specialized in Junguian Psychology and in Hemophilia since then.
LATEST PROJECTS:
1) Launching IN-HEMOACTION flash cards, 2026 updated version where I added new topics like Inhibitors and novel treatments, physiotherapy and a some playful activities like video games!
2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009-2014 Done !exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process.
2) P-TET (Pediatric Thrombosis Educational Tool) , for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success.
3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family"
4) Done: systematic review for the Cochrane Collaboration :"psychological interventions for people with hemophilia and their families"
5) Actually I counsel people who wants to perform as competition level athlete and collaborate with them seeking wellness and goals
On a more personal level I have 3 three great not anymore children :) Danaê 35, Rubi 29 and Iggy 27 and i am since 2019 a pole sport athlete at a national and international level. I love it! also To walk and look for shells on a beach and discovering deserts...:)
Frederica,
Thank you for your kind words and recognizing Jack’s big accomplishment!
Patrick