My 2 aims of this first social worker’s workshop were:
1) to desmystify the idea that it is hard to be an care giver in hemophilia
2) to start a little “suitcase” full of simple but useful informations to start working with the world of the ideas and emotions in a person and family with the blood clotting disorder. (what a looong sentence!) 🙂
click on the picture and ZOOM ( you can see the brochure of the Symposium, watch my mini-me when 8, the manual translated in Arabic and some answers…)
TOPICS:
a) imagine you are explaining that your son has hemophilia to a person that doesn’t have a clue about medical, genes, reading …. (simple as simple it can be)
b) confidence comes with practising, simplicity and clearness in what we do and say
c) checking informations with the group (definitions, explanations of genetic and hereditary issues, school and routine activities for the PWH, education at home)
ps: I put a picture of myself as a child because I like to maintain my “inner child” always near me when I have to be with people, it helps me to relax, have fun and be curious….like a child is.
————————————————-more coming
About frederica cassis
My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium.
I am back with news! life continues with its adventures...
I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 32 years now. Graduated in Clinical Psychology in
1991, I specialized in Junguian Psychology and in Hemophilia since then.
LATEST PROJECTS:
1) Launching IN-HEMOACTION flash cards, 2026 updated version where I added new topics like Inhibitors and novel treatments, physiotherapy and a some playful activities like video games!
2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009-2014 Done !exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process.
2) P-TET (Pediatric Thrombosis Educational Tool) , for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success.
3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family"
4) Done: systematic review for the Cochrane Collaboration :"psychological interventions for people with hemophilia and their families"
5) Actually I counsel people who wants to perform as competition level athlete and collaborate with them seeking wellness and goals
On a more personal level I have 3 three great not anymore children :) Danaê 35, Rubi 29 and Iggy 27 and i am since 2019 a pole sport athlete at a national and international level. I love it! also To walk and look for shells on a beach and discovering deserts...:)
click on the picture and ZOOM ( you can see the brochure of the Symposium, watch my mini-me when 8, the manual translated in Arabic and some answers…)
BLOOD 4 
Thank you for your site 😉
I made on photoshop backgrounds for myspace or youtube and more
my backgrounds:http://tinyurl.com/5b8ksl
all the best and thank you again!