Estou feliz porque finalmente, depois de 2 anos de trabalho de escrita, edição e revisão, a monografía que escreví saiu pro mundo! Ela está também disponível em Espanhol e Francês no site da própria FEDERAÇÃO MUNDIAL DE HEMOFILIA http:// http://www.wfh.org em Publications. E aqui também no blog em Inglês!
O legal deste trabalho é que pela primeira vez uma psicóloga escreve uma monografía com casos clínicos e de uma maneira aberta/simples para todos os cuidadores e agentes de saúde, não só para psicoterapeutas.
toh-44_psychosocial-care.pdf
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The monograph is ready and available at the World Federation of Hemophilia site http://www.wfh.org…! after 2 long years of writing, re-writing, editing, revisioning.. And it is here too in my blog !
I am proud of that work because I believe is the first monography of psicosocial aspects about living with hemophilia written by a psychotherapist that gives some concrete exemples of how she works…without all to much of theories but more practical aspects of the topic.
I hope people will like to read it and get inspired.
About frederica cassis
My name is Frederica Dillen CASSIS, born of a Belgium mother and an Egyptian father, on the 3rd of January 1966 in Brussels, Belgium.
I am back with news! life continues with its adventures...
I´ve travelled a lot, lived in many countries. Brazil is my seventh country and i live in Sao Paulo for 32 years now. Graduated in Clinical Psychology in
1991, I specialized in Junguian Psychology and in Hemophilia since then.
LATEST PROJECTS:
1) Launching IN-HEMOACTION flash cards, 2026 updated version where I added new topics like Inhibitors and novel treatments, physiotherapy and a some playful activities like video games!
2) HERO (Hemophilia Experiences Results and Opportunities) sponsored by Novo Nordisk since 2009-2014 Done !exploring through qualitative and quantitative analysis the psychosocial issues involving People with hemophilia, their carers and the health professionals in the treatment process.
2) P-TET (Pediatric Thrombosis Educational Tool) , for kids on anti-coagulant treatment...inspired on IN-HEMOACTION flashcards success.
3) I am a co-author along with psychologist Irene Fuchs and Edward Kuebler of a booklet called "Communication, love and sexuality for people with hemophilia, carriers and family"
4) Done: systematic review for the Cochrane Collaboration :"psychological interventions for people with hemophilia and their families"
5) Actually I counsel people who wants to perform as competition level athlete and collaborate with them seeking wellness and goals
On a more personal level I have 3 three great not anymore children :) Danaê 35, Rubi 29 and Iggy 27 and i am since 2019 a pole sport athlete at a national and international level. I love it! also To walk and look for shells on a beach and discovering deserts...:)
BLOOD 4 
i thought it was really interesting. and well written!! kept my attention when that type of writing can be so dry sometimes.
and what i really liked was not just learning about aspects of haemophilia i didn’t understand before but about the phases of human development. a lot of the insights you give apply much more broadly than just to those with a bleeding disorder.